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Neurology

Xenazine

Generic: tetrabenazine

Manufacturer: Lundbeck  ·  Program:

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Eligibility Criteria

Insurance Requirement

See program details

Residency

U.S. resident with a valid U.S. address

Program Information

Processing Time

4–8 weeks

Delivery Method

Varies by program

Application Method

Multiple

Indicated For

Chorea associated with Huntington's Disease

About This Medication

# Xenazine Patient Guide: How to Get Your Medication at Low or No Cost ## Important Notice About Xenazine Assistance Unfortunately, **Lundbeck does not currently operate an active manufacturer prescription assistance program (PAP) for Xenazine (tetrabenazine)**. However, this guide will help you explore all available options to reduce your medication costs. ## About Xenazine Xenazine (tetrabenazine) is a VMAT2 inhibitor prescribed to treat involuntary movements (chorea) associated with Huntington's Disease. Because this is a specialized medication for a rare condition, finding affordable access is important for many patients. ## Your Options for Affordable Xenazine ### Option 1: Xenazine Savings Card Lundbeck offers a **savings card program** that can significantly reduce your out-of-pocket costs if you have commercial insurance. **How It Works:** - The savings card may reduce your copay to as low as $0-$50 per prescription - Available exclusively for patients with **commercial insurance only** - Does NOT work with Medicare, Medicaid, or government-funded programs - Can be used at most major U.S. pharmacies **To Get Your Savings Card:** 1. Visit https://www.xenazineusa.com 2. Look for the savings card or patient assistance section 3. Follow instructions to print or request the card 4. Present it to your pharmacy when filling your prescription ### Option 2: State and Federal Programs If you have Medicare, Medicaid, or no insurance, explore these alternatives: **Medicare Extra Help (Low-Income Subsidy)** - Helps with prescription drug costs if you qualify based on income - Contact 1-800-MEDICARE or visit Medicare.gov **State Medicaid Programs** - Each state has different coverage policies for Xenazine - Contact your state's Medicaid office to ask about coverage and prior authorization requirements **Medicare Prescription Drug Plans (Part D)** - Some plans cover Xenazine with prior authorization - Review your plan's formulary or call your plan's customer service ### Option 3: NeedyMeds and Other Nonprofit Resources **NeedyMeds.org** - Free database of patient assistance programs and low-cost clinics - Search for Xenazine or tetrabenazine assistance - Includes links to programs you may qualify for **Patient Advocacy Organizations** - Huntington's Disease Society of America (HDSA) may have resources or financial assistance information - They can connect you with local support and cost-reduction strategies **Pharmaceutical Manufacturer Generic Programs** If your doctor approves a generic version (tetrabenazine), some generic manufacturers may offer assistance programs. Ask your doctor or pharmacist. ## Income Eligibility While Lundbeck does not have an active PAP, many alternative programs use income thresholds. Income limits vary by program and household size. Generally: | Household Size | Approximate Income Limit* | |---|---| | 1 | $14,000-$20,000 | | 2 | $19,000-$27,000 | | 3 | $24,000-$34,000 | | 4 | $29,000-$41,000 | | 5+ | Add ~$5,000 per person | *These are estimates. Actual limits vary by program. Check with each program for current thresholds. ## Insurance Requirements **Xenazine Savings Card:** Commercial insurance only. Does NOT work with: - Medicare - Medicaid - Veterans Affairs (VA) - TRICARE - Other government-funded programs **State/Federal Programs:** Designed specifically for uninsured or government insurance patients. ## Step-by-Step Instructions ### To Use the Xenazine Savings Card: 1. **Visit the website:** Go to https://www.xenazineusa.com and locate the savings card section 2. **Complete registration:** Provide your name, contact information, and insurance details 3. **Print or request the card:** You can usually print it immediately or have it mailed 4. **Show at pharmacy:** Present the card when filling your Xenazine prescription 5. **Enjoy savings:** Your copay should be reduced according to the card's terms ### To Apply for State/Federal Programs: 1. **Contact Medicare:** Call 1-800-MEDICARE or visit Medicare.gov to learn about Part D, Extra Help, or other programs 2. **Call your state Medicaid:** Search "[Your State] Medicaid" + "phone number" to reach your local office 3. **Check NeedyMeds.org:** Search for Xenazine or tetrabenazine to see all available programs 4. **Talk to your doctor's office:** They may know of additional resources or patient assistance programs specific to your area 5. **Gather documents:** Have your income verification and prescription information ready ## Processing Time and Delivery Timelines vary by program: - **Savings Card:** Usually available immediately online or within 1-2 weeks by mail - **State/Federal Programs:** 4-8 weeks typical processing time - **Delivery:** By mail or available to print/activate Once approved, you'll receive instructions on how to use your assistance at the pharmacy. ## What If You're Denied? If you don't qualify for assistance, consider these options: 1. **Ask your doctor about generic tetrabenazine:** May be more affordable 2. **Request a dose adjustment:** Sometimes lower doses can help with costs 3. **Negotiate with your pharmacy:** Some pharmacies offer cash discounts 4. **Contact patient advocacy groups:** They may know of local resources or grants 5. **Reapply annually:** Income situations change; you may qualify next year ## Refills and Reauthorization Once you receive assistance (savings card or program approval): - **Savings cards** typically last 1-2 years; check the card for expiration - **State programs** may require annual reauthorization—watch for renewal notices - Keep your assistance card/documentation with you at each pharmacy visit - Contact the program 30 days before expiration to renew if needed ## Questions to Ask Your Healthcare Team - "Are there any samples of Xenazine available?" - "What is the cost difference between Xenazine and generic tetrabenazine?" - "Have you worked with other patients on Xenazine? What assistance did they use?" - "Can you help me apply for Medicare Extra Help or state programs?" ## Important Reminders - Always use a prescription from your doctor; assistance programs require this - Never stop or change your Xenazine dose without talking to your doctor - Savings cards and programs change; verify current terms before each refill - If you move to a different state, check if your program still applies - Keep copies of all program documentation ## Legal Disclaimer This guide provides general information about Xenazine assistance options as of the current date. Program availability, eligibility requirements, and benefits change frequently. This information is not a guarantee of coverage or assistance. Always verify current program details directly with providers and your healthcare team. For medical questions about Xenazine, consult your prescribing physician. This guide is educational and should not replace professional financial or medical advice.

Program information last verified: March 25, 2026

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