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Neurology

Daybue

Generic: trofinetide

Manufacturer: Acadia Pharmaceuticals  ·  Program: Acadia Connect Patient Assistance Program

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Eligibility Criteria

Insurance Requirement

Uninsured or underinsured; not covered by insurance plan

Residency

US resident

Eligibility based on program's criteria; contact Acadia Connect to check qualification for uninsured or underinsured

Program Information

Processing Time

4–8 weeks

Delivery Method

Prescription delivery

Application Method

Multiple

Indicated For

Rett syndrome

About This Medication

# Acadia Connect Patient Assistance Program: How to Get DAYBUE at Low or No Cost ## About DAYBUE (Trofinetide) DAYBUE (trofinetide) is a prescription medication manufactured by Acadia Pharmaceuticals. If you or a loved one has been prescribed DAYBUE but are concerned about the cost, the Acadia Connect Patient Assistance Program may help you access this medication affordably or at no cost. ## Who Qualifies for Acadia Connect? The Acadia Connect program is designed to help patients who are **uninsured or underinsured**—meaning you either don't have health insurance or your current insurance plan doesn't cover DAYBUE. The program provides support to help you afford your prescription. While specific income thresholds are not publicly listed, Acadia Connect evaluates eligibility based on individual circumstances. If you're unsure whether you qualify, the program's Care Coordinators can review your situation during the enrollment process. ## Insurance Requirements To be eligible for Acadia Connect assistance, you must be: - **Uninsured** (no active health insurance plan), or - **Underinsured** (your insurance plan does not cover DAYBUE or has high out-of-pocket costs) If you have insurance that covers DAYBUE, you may still qualify for copay assistance through the Acadia Connect Copay Card Program, which helps reduce your copayment or coinsurance amounts. ## How to Apply: Step-by-Step Enrolling in Acadia Connect is straightforward and can be done in three ways: ### Option 1: Enroll at Your Doctor's Office When you receive your DAYBUE prescription, ask your healthcare provider to have you sign the DAYBUE Prescription and Enrollment Form at the office. Your provider will submit this form along with your prescription, and you'll be enrolled in the program. ### Option 2: Submit the Patient Consent Form If you didn't sign the enrollment form at your doctor's office, you can complete the DAYBUE Patient Consent Form (available on the Acadia Connect website) and submit it yourself. This form authorizes Acadia to process your health information and determine your eligibility. ### Option 3: Call Acadia Connect Directly You can speak with a Nurse Care Coordinator by calling **1-844-737-2223**, Monday through Friday, 8 AM to 8 PM ET. The Care Coordinator will guide you through enrollment and answer any questions about the program. ## What Information You'll Need When applying, be prepared to provide: - Your full name and date of birth - Contact information (phone number and email) - Current address - Insurance information (if applicable) - Your diagnosis and reason for DAYBUE prescription - Authorization to share your health information with Acadia Pharmaceuticals ## Timeline and Medication Delivery While specific processing times are not publicly stated, Acadia Connect aims to process applications efficiently. Once approved, your DAYBUE will be delivered directly to you or your healthcare provider via prescription delivery services. Your Care Coordinator will keep you informed throughout the process and coordinate delivery details with you. ## Your Dedicated Care Coordinator Once enrolled, you'll be paired with a dedicated Care Coordinator who will: - Get to know your unique situation and medical needs - Help navigate insurance complexities - Provide resources to make your medication more affordable - Work with your healthcare provider to ensure you receive appropriate support - Answer questions about your prescription and the program ## Important Program Terms **Enrollment Validity**: Your enrollment is valid for 12 months from the date of approval. After 12 months, you'll need to reapply to continue receiving assistance. **Notification Requirements**: If your insurance situation changes at any time, you must notify Acadia Connect immediately by calling 1-844-737-2223. This ensures your eligibility status remains accurate. **Program Authorization**: By enrolling, you authorize Acadia Pharmaceuticals to: - Investigate your insurance benefits and coverage - Process your health information for program purposes - Assess your eligibility for free medication or financial assistance - Coordinate your care and medication delivery - Contact you about the program You can withdraw this authorization at any time by calling 1-844-737-2223 or mailing Acadia Connect at PO Box 15713, Pittsburgh, PA 15244. ## What If Your Application Is Denied? If you're not approved for the program, your Care Coordinator will discuss alternative options with you, which may include: - Information about other patient assistance programs - Resources for financial aid or medication cost reduction - Discussion of your insurance coverage options - Referrals to community health resources You can also reapply if your circumstances change. ## Contact Information For questions about enrollment, eligibility, or the program: **Phone**: 1-844-737-2223 **Hours**: Monday–Friday, 8 AM to 8 PM ET **Mailing Address**: Acadia Connect, PO Box 15713, Pittsburgh, PA 15244 ## Disclaimer This guide provides general information about the Acadia Connect Patient Assistance Program for DAYBUE. Submission of an application does not guarantee approval. Program eligibility, benefits, and terms are subject to change. For the most current and complete information, contact Acadia Connect directly or visit the official Acadia Connect website. This information is not a substitute for professional medical or financial advice. Always consult with your healthcare provider and insurance company regarding your specific situation.

Program information last verified: March 25, 2026

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